‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers

‘Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: Fertility Experiences of People With Primary Ciliary Dyskinesia and Their Family Caregivers

ABSTRACT Background Primary ciliary dyskinesia (PCD) affects fertility in both females and males. To understand the impact and concerns among people with PCD and parents of affected children (family caregivers), we explored how they report their experiences with fertility. Methods We used qualitativ...

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Bibliographic Details
Main Authors: Leonie D. Schreck, Sophie Meyer, Eva S. L. Pedersen, Yin Ting Lam, Hansruedi Silberschmidt, Sara Bellu, Living with PCD patient advisory group, Sofía C. Zambrano, Claudia E. Kuehni, Myrofora Goutaki
Format: Article
Language:English
Published: Wiley 2025-06-01
Series:Health Expectations
Subjects:
fertility experiences
participatory
patient‐reported
primary ciliary dyskinesia
qualitative research
reproductive health
Online Access:https://doi.org/10.1111/hex.70316
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