Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires

Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires

ABSTRACT Introduction There is a general need for sharing practical examples of Patient and Public Involvement (PPI) within the research field to learn from and inspire. The aim of this article is to describe our process evaluation of PPI within the development process of the EUonQoL‐Kit, a new set...

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Main Authors: Merel Engelaar, Femke vanSchelven, Nanne Bos, Marion L'Hote, Clémentine Rialland, Norbert Couespel, Carina Dantas, Caitriona Higgins, Tapani Kalmi, Inke Minnée‐van Braak, Laura Pinnavaia, Giovanni Apolone, Cinzia Brunelli, Augusto Caraceni, Montse Ferrer, Mogens Groenvold, Stein Kaasa, Gennaro Ciliberto, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Galina Velikova, Jany Rademakers
Format: Article
Language:English
Published: Wiley 2025-06-01
Series:Health Expectations
Subjects:
co‐researchers
Europe
oncology
patient and public involvement
patient participation
Online Access:https://doi.org/10.1111/hex.70267
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