Health-related quality of life in rare bleeding disorders: results from the Rare Bleeding Disorders in the Netherlands study
Background: Clinical bleeding phenotype varies substantially among patients with rare bleeding disorders (RBDs). Patient-reported outcomes may provide valuable insights into health-related quality of life (HRQoL) and disease burden. Objectives: To evaluate HRQoL in patients with rare coagulation fac...
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Main Authors: | Sterre P.E. Willems, Marjon H. Cnossen, Nick van Es, Paul L. den Exter, Ilmar C. Kruis, Karina Meijer, Laurens Nieuwenhuizen, Joline L. Saes, Nicole M.A. Blijlevens, Waander L. van Heerde, Saskia E.M. Schols |
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Format: | Article |
Language: | English |
Published: |
Elsevier
2025-07-01
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Series: | Research and Practice in Thrombosis and Haemostasis |
Subjects: | |
Online Access: | http://www.sciencedirect.com/science/article/pii/S2475037925002857 |
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