Unmet needs in the management of abnormal uterine bleeding: insights from social media listening
Background Abnormal uterine bleeding (AUB) impacts the quality of life of women globally. While international classifications and frameworks exist, there are still critical unmet needs in awareness, diagnosis, treatment, and patient support. To better understand these, the lived experiences of patie...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2025-12-01
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| Series: | Gynecological Endocrinology |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/09513590.2025.2532613 |
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| author | Marcelo Graziano Custodio Hisham Arab Andressa da Silva van der Laan Natalia Pedachenko Qinjie Tian Maria Celeste Osorio Wender Tony Piha Rubina Sohail Fernando Pineda Jobert Neves Rishma Dhillon Pai Tommaso Simoncini |
| author_facet | Marcelo Graziano Custodio Hisham Arab Andressa da Silva van der Laan Natalia Pedachenko Qinjie Tian Maria Celeste Osorio Wender Tony Piha Rubina Sohail Fernando Pineda Jobert Neves Rishma Dhillon Pai Tommaso Simoncini |
| author_sort | Marcelo Graziano Custodio |
| collection | DOAJ |
| description | Background Abnormal uterine bleeding (AUB) impacts the quality of life of women globally. While international classifications and frameworks exist, there are still critical unmet needs in awareness, diagnosis, treatment, and patient support. To better understand these, the lived experiences of patients with AUB shared on social media can offer valuable insights.Objective To identify and analyze unmet needs in the management of AUB as expressed during social media discussions.Methods Using the social media listening tool Sprinklr Social (Sprinklr Inc.), public posts from X (X Corp.) related to AUB from seven countries (Brazil, China, India, Mexico, Pakistan, Saudi Arabia, Ukraine) over a 10-year period (2014–2024) were analyzed. Posts were categorized by topic, sentiment, and emotion; further analyses assessed patients’ unmet needs and feelings.Results A total of 926 posts were included. Analysis revealed five critical unmet needs: lack of awareness and understanding (41.8%), impact on wellbeing (27.6%), diagnosis issues (10.9%), dissatisfaction with treatment options (9.7%), and undervalued impact and advocacy (8.6%). Posts about diagnosis and symptoms carried the most negative sentiments; many patients expressed frustration over delayed diagnoses and dissatisfaction with treatment options. Additionally, the emotional and psychological burden of AUB was a recurring theme, suggesting the need for more holistic care approaches.Conclusions Gaps in AUB management were identified, with strong emphasis on the need for better patient education, more effective diagnostic processes, and personalized treatment strategies. Incorporating patient voices during the development of treatment guidelines and healthcare policies is crucial for addressing these unmet needs and improving patient outcomes. |
| format | Article |
| id | doaj-art-f08ff29fa21b4587b4de19fb48a6cec8 |
| institution | Matheson Library |
| issn | 0951-3590 1473-0766 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Gynecological Endocrinology |
| spelling | doaj-art-f08ff29fa21b4587b4de19fb48a6cec82025-07-25T15:22:39ZengTaylor & Francis GroupGynecological Endocrinology0951-35901473-07662025-12-0141110.1080/09513590.2025.2532613Unmet needs in the management of abnormal uterine bleeding: insights from social media listeningMarcelo Graziano Custodio0Hisham Arab1Andressa da Silva van der Laan2Natalia Pedachenko3Qinjie Tian4Maria Celeste Osorio Wender5Tony Piha6Rubina Sohail7Fernando Pineda8Jobert Neves9Rishma Dhillon Pai10Tommaso Simoncini11Global Innovation and Development, Established Pharmaceuticals Division, Abbott Products Operations AG, Allshwil, SwitzerlandObstetrics and Gynecology Department, Dr Arab Medical Center, Jeddah, Saudi ArabiaGlobal Innovation and Development, Established Pharmaceuticals Division, Abbott Products Operations AG, Allshwil, SwitzerlandObstetrics, Gynecology and Perinatology Department, Shupyk National Healthcare University of Ukraine, Kyiv, UkraineDepartment of Obstetrics and Gynecology, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences, Beijing, ChinaObstetrics and Gynaecology Department, Universidade Federal do Rio Grande do Sul, Porto Alegre, Rio Grande do Sul, BrazilGlobal Innovation and Development, Established Pharmaceuticals Division, Abbott Products Operations AG, Allshwil, SwitzerlandDepartment of Obstetrics and Gynecology, Hameed Latif Hospital, Lahore, PakistanGynecology, Obstetrics and Urogynecology, Hospital San Angel Inn Patriotismo, Mexico City, MexicoEstablished Pharmaceuticals Division, Abbott, Sao Paulo, BrazilDepartment of Obstetrics and Gynaecology, Lilavati Hospital, Mumbai, IndiaDivision of Obstetrics and Gynecology, Department of Clinical and Experimental Medicine, University of Pisa, Pisa, ItalyBackground Abnormal uterine bleeding (AUB) impacts the quality of life of women globally. While international classifications and frameworks exist, there are still critical unmet needs in awareness, diagnosis, treatment, and patient support. To better understand these, the lived experiences of patients with AUB shared on social media can offer valuable insights.Objective To identify and analyze unmet needs in the management of AUB as expressed during social media discussions.Methods Using the social media listening tool Sprinklr Social (Sprinklr Inc.), public posts from X (X Corp.) related to AUB from seven countries (Brazil, China, India, Mexico, Pakistan, Saudi Arabia, Ukraine) over a 10-year period (2014–2024) were analyzed. Posts were categorized by topic, sentiment, and emotion; further analyses assessed patients’ unmet needs and feelings.Results A total of 926 posts were included. Analysis revealed five critical unmet needs: lack of awareness and understanding (41.8%), impact on wellbeing (27.6%), diagnosis issues (10.9%), dissatisfaction with treatment options (9.7%), and undervalued impact and advocacy (8.6%). Posts about diagnosis and symptoms carried the most negative sentiments; many patients expressed frustration over delayed diagnoses and dissatisfaction with treatment options. Additionally, the emotional and psychological burden of AUB was a recurring theme, suggesting the need for more holistic care approaches.Conclusions Gaps in AUB management were identified, with strong emphasis on the need for better patient education, more effective diagnostic processes, and personalized treatment strategies. Incorporating patient voices during the development of treatment guidelines and healthcare policies is crucial for addressing these unmet needs and improving patient outcomes.https://www.tandfonline.com/doi/10.1080/09513590.2025.2532613Social media listeningabnormal uterine bleedingirregular periodssecondary amenorrheaheavy menstrual bleeding |
| spellingShingle | Marcelo Graziano Custodio Hisham Arab Andressa da Silva van der Laan Natalia Pedachenko Qinjie Tian Maria Celeste Osorio Wender Tony Piha Rubina Sohail Fernando Pineda Jobert Neves Rishma Dhillon Pai Tommaso Simoncini Unmet needs in the management of abnormal uterine bleeding: insights from social media listening Gynecological Endocrinology Social media listening abnormal uterine bleeding irregular periods secondary amenorrhea heavy menstrual bleeding |
| title | Unmet needs in the management of abnormal uterine bleeding: insights from social media listening |
| title_full | Unmet needs in the management of abnormal uterine bleeding: insights from social media listening |
| title_fullStr | Unmet needs in the management of abnormal uterine bleeding: insights from social media listening |
| title_full_unstemmed | Unmet needs in the management of abnormal uterine bleeding: insights from social media listening |
| title_short | Unmet needs in the management of abnormal uterine bleeding: insights from social media listening |
| title_sort | unmet needs in the management of abnormal uterine bleeding insights from social media listening |
| topic | Social media listening abnormal uterine bleeding irregular periods secondary amenorrhea heavy menstrual bleeding |
| url | https://www.tandfonline.com/doi/10.1080/09513590.2025.2532613 |
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