Prevalence rates of prolonged grief disorder are overestimated

Prolonged grief disorder (PGD) has been included in the International Classification of Diseases 11th edition (ICD-11) and the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Text Revision (DSM-5-TR). Accurate assessment of the prevalence of PGD is imperative to healthcare poli...

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Main Author: Maarten C. Eisma
Format: Article
Language:English
Published: Taylor & Francis Group 2025-12-01
Series:European Journal of Psychotraumatology
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Online Access:https://www.tandfonline.com/doi/10.1080/20008066.2025.2520634
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author Maarten C. Eisma
author_facet Maarten C. Eisma
author_sort Maarten C. Eisma
collection DOAJ
description Prolonged grief disorder (PGD) has been included in the International Classification of Diseases 11th edition (ICD-11) and the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Text Revision (DSM-5-TR). Accurate assessment of the prevalence of PGD is imperative to healthcare policy and practice. Systematic reviews and meta-analyses of at-risk bereaved subgroups (e.g. those bereaved by natural disasters, unnatural causes, and COVID-19) yield very high prevalence rates (24–87%). These findings appear at odds with the well-established finding that most people respond to major negative life events resiliently. This letter explores two potential explanations for overestimated prevalence rates of PGD. First, non-probability sampling, typical to research in vulnerable bereaved subgroups, leads to overestimation of prevalence rates of PGD relative to probability sampling. Secondly, based on epidemiological research in depression and post-traumatic stress disorder, we consider the risk that the use of self-report scales, typical to grief research, may lead to overestimation of prevalence rates compared to clinical interviewing. We recommend international research, based on probability sampling, that systematically assesses loss characteristics and circumstances as well as ICD-11 and DSM-5-TR PGD symptoms, using validated scales, and, ideally, clinical interviewing in a subset of participants, to enable more accurate assessment of prevalence rates of PGD in different bereaved populations.
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spelling doaj-art-c10f33f83ec7410fadfdf38b64b9124b2025-06-30T13:45:54ZengTaylor & Francis GroupEuropean Journal of Psychotraumatology2000-80662025-12-0116110.1080/20008066.2025.2520634Prevalence rates of prolonged grief disorder are overestimatedMaarten C. Eisma0Department of Clinical Psychology and Experimental Psychopathology, Faculty of Behavioral and Social Sciences, University of Groningen, Groningen, The NetherlandsProlonged grief disorder (PGD) has been included in the International Classification of Diseases 11th edition (ICD-11) and the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Text Revision (DSM-5-TR). Accurate assessment of the prevalence of PGD is imperative to healthcare policy and practice. Systematic reviews and meta-analyses of at-risk bereaved subgroups (e.g. those bereaved by natural disasters, unnatural causes, and COVID-19) yield very high prevalence rates (24–87%). These findings appear at odds with the well-established finding that most people respond to major negative life events resiliently. This letter explores two potential explanations for overestimated prevalence rates of PGD. First, non-probability sampling, typical to research in vulnerable bereaved subgroups, leads to overestimation of prevalence rates of PGD relative to probability sampling. Secondly, based on epidemiological research in depression and post-traumatic stress disorder, we consider the risk that the use of self-report scales, typical to grief research, may lead to overestimation of prevalence rates compared to clinical interviewing. We recommend international research, based on probability sampling, that systematically assesses loss characteristics and circumstances as well as ICD-11 and DSM-5-TR PGD symptoms, using validated scales, and, ideally, clinical interviewing in a subset of participants, to enable more accurate assessment of prevalence rates of PGD in different bereaved populations.https://www.tandfonline.com/doi/10.1080/20008066.2025.2520634Griefbereavementcomplicated griefscreeningclinical interviewLuto
spellingShingle Maarten C. Eisma
Prevalence rates of prolonged grief disorder are overestimated
European Journal of Psychotraumatology
Grief
bereavement
complicated grief
screening
clinical interview
Luto
title Prevalence rates of prolonged grief disorder are overestimated
title_full Prevalence rates of prolonged grief disorder are overestimated
title_fullStr Prevalence rates of prolonged grief disorder are overestimated
title_full_unstemmed Prevalence rates of prolonged grief disorder are overestimated
title_short Prevalence rates of prolonged grief disorder are overestimated
title_sort prevalence rates of prolonged grief disorder are overestimated
topic Grief
bereavement
complicated grief
screening
clinical interview
Luto
url https://www.tandfonline.com/doi/10.1080/20008066.2025.2520634
work_keys_str_mv AT maartenceisma prevalenceratesofprolongedgriefdisorderareoverestimated