Primary Immunodeficiency Registry System: The Minimum Data Set Designing Phase—A Systematic Review and Quantitative Delphi Study

Primary Immunodeficiency Registry System: The Minimum Data Set Designing Phase—A Systematic Review and Quantitative Delphi Study

ABSTRACT Background and Aims Registries are powerful tools for data management. Designing a minimum data set as the first step in registry development helps collect relevant and efficient data. The aim of this study was to develop a minimum data set for the primary immunodeficiency registry system....

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Bibliographic Details
Main Authors: Saman Mohammadpour, Hassan Emami, Sima Shokri, Rafat Bagherzadeh, Soqrat Omari Shekaftik, Zanko Hosseini
Format: Article
Language:English
Published: Wiley 2025-07-01
Series:Health Science Reports
Subjects:
MDS
minimum data set
PID
primary immunodeficiency
registry
Online Access:https://doi.org/10.1002/hsr2.71015
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https://doi.org/10.1002/hsr2.71015

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