Measuring intensity of end of life care: a systematic review.

<h4>Background</h4>Many studies have measured the intensity of end of life care. However, no summary of the measures used in the field is currently available.<h4>Objectives</h4>To summarise features, characteristics of use and reported validity of measures used for evaluating...

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Main Authors: Xhyljeta Luta, Maud Maessen, Matthias Egger, Andreas E Stuck, David Goodman, Kerri M Clough-Gorr
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2015-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0123764
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author Xhyljeta Luta
Maud Maessen
Matthias Egger
Andreas E Stuck
David Goodman
Kerri M Clough-Gorr
author_facet Xhyljeta Luta
Maud Maessen
Matthias Egger
Andreas E Stuck
David Goodman
Kerri M Clough-Gorr
author_sort Xhyljeta Luta
collection DOAJ
description <h4>Background</h4>Many studies have measured the intensity of end of life care. However, no summary of the measures used in the field is currently available.<h4>Objectives</h4>To summarise features, characteristics of use and reported validity of measures used for evaluating intensity of end of life care.<h4>Methods</h4>This was a systematic review according to PRISMA guidelines. We performed a comprehensive literature search in Ovid Medline, Embase, The Cochrane Library of Systematic Reviews and reference lists published between 1990-2014. Two reviewers independently screened titles, abstracts, full texts and extracted data. Studies were eligible if they used a measure of end of life care intensity, defined as all quantifiable measures describing the type and intensity of medical care administered during the last year of life.<h4>Results</h4>A total of 58 of 1590 potentially eligible studies met our inclusion criteria and were included. The most commonly reported measures were hospitalizations (n = 44), intensive care unit admissions (n = 39) and chemotherapy use (n = 27). Studies measured intensity of care in different timeframes ranging from 48 hours to 12 months. The majority of studies were conducted in cancer patients (n = 31). Only 4 studies included information on validation of the measures used. None evaluated construct validity, while 3 studies considered criterion and 1 study reported both content and criterion validity.<h4>Conclusions</h4>This review provides a synthesis to aid in choosing intensity of end of life care measures based on their previous use but simultaneously highlights the crucial need for more validation studies and consensus in the field.
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spelling doaj-art-9083721000034d2f92b4eef3d4bf8dd32025-07-14T05:31:48ZengPublic Library of Science (PLoS)PLoS ONE1932-62032015-01-01104e012376410.1371/journal.pone.0123764Measuring intensity of end of life care: a systematic review.Xhyljeta LutaMaud MaessenMatthias EggerAndreas E StuckDavid GoodmanKerri M Clough-Gorr<h4>Background</h4>Many studies have measured the intensity of end of life care. However, no summary of the measures used in the field is currently available.<h4>Objectives</h4>To summarise features, characteristics of use and reported validity of measures used for evaluating intensity of end of life care.<h4>Methods</h4>This was a systematic review according to PRISMA guidelines. We performed a comprehensive literature search in Ovid Medline, Embase, The Cochrane Library of Systematic Reviews and reference lists published between 1990-2014. Two reviewers independently screened titles, abstracts, full texts and extracted data. Studies were eligible if they used a measure of end of life care intensity, defined as all quantifiable measures describing the type and intensity of medical care administered during the last year of life.<h4>Results</h4>A total of 58 of 1590 potentially eligible studies met our inclusion criteria and were included. The most commonly reported measures were hospitalizations (n = 44), intensive care unit admissions (n = 39) and chemotherapy use (n = 27). Studies measured intensity of care in different timeframes ranging from 48 hours to 12 months. The majority of studies were conducted in cancer patients (n = 31). Only 4 studies included information on validation of the measures used. None evaluated construct validity, while 3 studies considered criterion and 1 study reported both content and criterion validity.<h4>Conclusions</h4>This review provides a synthesis to aid in choosing intensity of end of life care measures based on their previous use but simultaneously highlights the crucial need for more validation studies and consensus in the field.https://doi.org/10.1371/journal.pone.0123764
spellingShingle Xhyljeta Luta
Maud Maessen
Matthias Egger
Andreas E Stuck
David Goodman
Kerri M Clough-Gorr
Measuring intensity of end of life care: a systematic review.
PLoS ONE
title Measuring intensity of end of life care: a systematic review.
title_full Measuring intensity of end of life care: a systematic review.
title_fullStr Measuring intensity of end of life care: a systematic review.
title_full_unstemmed Measuring intensity of end of life care: a systematic review.
title_short Measuring intensity of end of life care: a systematic review.
title_sort measuring intensity of end of life care a systematic review
url https://doi.org/10.1371/journal.pone.0123764
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